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Daily Archives: August 4, 2015

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Man Embarks On 1800 km Bike Ride, All for this Little Girl

  • Post author:Patient Worthy Contributor
  • Post published:August 4, 2015
  • Post category:Cystinosis/Rare Disease

Dan Giancola is about to take the ride of this life. Literally. The St. Catharines Standard details his mission to raise more than $100,000 for Abbi, a nine-year-old girl fighting…

Continue Reading Man Embarks On 1800 km Bike Ride, All for this Little Girl

The Empire Strikes Back! This Company’s Valiant Effort Saves Lives

  • Post author:Patient Worthy Contributor
  • Post published:August 4, 2015
  • Post category:Familial Hypercholesterolemia/Rare Disease

July 21st, 2015: Pharmaceutical giant, Amgen, was awarded a stunning approval from the European Commission for Repatha, a breakthrough cholesterol-lowering drug as reported by the St. Louis Post-Dispatch. The drug…

Continue Reading The Empire Strikes Back! This Company’s Valiant Effort Saves Lives

Fear, Frustration, Hope, Acceptance: 4 Struggles of a CVID Diagnosis

  • Post author:Patient Worthy Contributor
  • Post published:August 4, 2015
  • Post category:CVID/Primary Immunodeficiencies

Kathy Antilla recalls the moment she heard her son, Issac, say those words she thought she'd never hear: "Mom! Look at me! I'm just like a normal kid now." In…

Continue Reading Fear, Frustration, Hope, Acceptance: 4 Struggles of a CVID Diagnosis
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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