Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: September 25, 2015

  1. Home>
  2. 2015>
  3. September>
  4. 25
Editor’s Choice Weekend Roundup: 9-25-15

Editor’s Choice Weekend Roundup: 9-25-15

  • Post author:Patient Worthy Contributor
  • Post published:September 25, 2015
  • Post category:Cystinosis/Dystonia/Rare Disease

Check out and pass along the Editor's Choice articles of the week! [one_half] [/one_half] [one_half_last] Learn why this Viral Message is so Important After a waitress took her speech and…

Continue Reading Editor’s Choice Weekend Roundup: 9-25-15
Do or Don’t: 5 Powerful Signs You Need To Break Up With Your Doctor

Do or Don’t: 5 Powerful Signs You Need To Break Up With Your Doctor

  • Post author:PW Blogger
  • Post published:September 25, 2015
  • Post category:Rare Disease

Just like breaking up with your significant other can be hard to do, so can breaking up with your doctor. After all, he or she may have been with you…

Continue Reading Do or Don’t: 5 Powerful Signs You Need To Break Up With Your Doctor
This Mom’s Heart Will Make You Want to Act
Pixabay

This Mom’s Heart Will Make You Want to Act

  • Post author:Patient Worthy Contributor
  • Post published:September 25, 2015
  • Post category:Dystonia/Rare Disease

It's September! You know what that means? Happy "Dystonia Awareness Month!" Maybe "Happy" is the wrong word... Because, while spreading awareness is always something to cheer about, dystonia is not. Here…

Continue Reading This Mom’s Heart Will Make You Want to Act
Attend The Global Genes Patient Advocacy Summit Live From Your Couch!
Pixabay

Attend The Global Genes Patient Advocacy Summit Live From Your Couch!

  • Post author:Patient Worthy Contributor
  • Post published:September 25, 2015
  • Post category:Rare Disease

Thank goodness for the 21st Century! If you have been dying to attend this year's Global Genes Patient Advocacy Summit in California, but there's no way you are making it…

Continue Reading Attend The Global Genes Patient Advocacy Summit Live From Your Couch!

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info