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Daily Archives: October 5, 2015

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How One New Jersey Town is Bringing in the Big Guns to Beat Dystonia

  • Post author:Patient Worthy Contributor
  • Post published:October 5, 2015
  • Post category:Dystonia/Rare Disease

Right now, you and I are smack dab in the middle of one of history’s greatest information ages. We have more ways to learn about the world around us than…

Continue Reading How One New Jersey Town is Bringing in the Big Guns to Beat Dystonia

Moms Know Best (and Doctors Need to Listen)

  • Post author:Patient Worthy Contributor
  • Post published:October 5, 2015
  • Post category:Rare Disease/Tyrosinemia

Okay, Dr. House: We've got first-time parents who claim their newborn is "cranky, fussy, projectile vomiting, and refusing to eat." Although they also say the child has a distended stomach,…

Continue Reading Moms Know Best (and Doctors Need to Listen)
Meme Monday: Raising Awareness for #CureforCaps

Meme Monday: Raising Awareness for #CureforCaps

  • Post author:Patient Worthy Contributor
  • Post published:October 5, 2015
  • Post category:CAPS/FCAS/Muckle-Wells Syndrome/Neonatal onset multisystem inflammatory disease

After a great week of telling the honest stories of people living with invisible illnesses for invisible illness awareness week, we want to focus this Meme Monday on a group…

Continue Reading Meme Monday: Raising Awareness for #CureforCaps

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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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