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Daily Archives: October 23, 2015

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Editor’s Choice Weekend Roundup: Adorable Wee Ones, Crazy Songs, and More!

Editor’s Choice Weekend Roundup: Adorable Wee Ones, Crazy Songs, and More!

  • Post author:Rebekah
  • Post published:October 23, 2015
  • Post category:CAPS/Cystinosis/FCAS

We've seen great memes from the community, an awesome mom who is trying to raise awareness for CVID through a viral video, and so much more. Check out the highlights…

Continue Reading Editor’s Choice Weekend Roundup: Adorable Wee Ones, Crazy Songs, and More!
The SubQ Challenge: How To Really Overcome Your Needling Fear

The SubQ Challenge: How To Really Overcome Your Needling Fear

  • Post author:Winnie Nash
  • Post published:October 23, 2015
  • Post category:Behçet's/Rare Disease

To SubQ, or not to SubQ? That is a question many people living with chronic illnesses face at some point in their lives. For some, subcutaneous injection (SubQ) is the…

Continue Reading The SubQ Challenge: How To Really Overcome Your Needling Fear
What Should You Know Waiting for Gene Therapy?

What Should You Know Waiting for Gene Therapy?

  • Post author:Erica Zahn
  • Post published:October 23, 2015
  • Post category:Primary Immunodeficiencies/Rare Disease

For many people suffering from rare diseases, gene therapy offers the hope for relief and perhaps a cure for their particular condition. But while many studies are underway, to date, few drugs have…

Continue Reading What Should You Know Waiting for Gene Therapy?
This Town Completely Blows Man Away with Their Generosity

This Town Completely Blows Man Away with Their Generosity

  • Post author:Winnie Nash
  • Post published:October 23, 2015
  • Post category:Rare Disease/Sarcoidosis

When this Arkansas community rallies, they conquer. TJ Cluck was one of the thousands of people involved in the Joplin Tornado, a devastating EF5 twister that killed 161 people in…

Continue Reading This Town Completely Blows Man Away with Their Generosity
Which Hilarious Character is Your Rare Disease

Which Hilarious Character is Your Rare Disease

  • Post author:Kiki Jones
  • Post published:October 23, 2015
  • Post category:Ankylosing Spondylitis/Behçet's/CAPS/CVID/Dystonia/Familial Hypercholesterolemia/HAE/Rare Disease

Having a rare disease sucks, but sometimes it helps to cut your disease down to size mentally--especially if you can't do it physically! And, hey, laughing is better than crying,…

Continue Reading Which Hilarious Character is Your Rare Disease
Upcoming Event! Virginia Epilepsy Awareness Walk

Upcoming Event! Virginia Epilepsy Awareness Walk

  • Post author:Rebekah
  • Post published:October 23, 2015
  • Post category:Rare Disease

What are you going to be doing on the afternoon of Halloween? Some kind-hearted people will be participating in a walk, for a spooky great cause. On Saturday October 31st…

Continue Reading Upcoming Event! Virginia Epilepsy Awareness Walk
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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