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Daily Archives: December 21, 2015

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Meme Monday: We Keep it P.C. for Christmas (oops)

Meme Monday: We Keep it P.C. for Christmas (oops)

  • Post author:Rebekah
  • Post published:December 21, 2015
  • Post category:Rare Disease

Although it is often called the "Most Wonderful Time of the Year", people can get pretty up-in-arms about holiday lingo and traditions. If you don't believe us, just ask Starbucks...…

Continue Reading Meme Monday: We Keep it P.C. for Christmas (oops)
What Every New Mom Should Know About Tyrosinemia

What Every New Mom Should Know About Tyrosinemia

  • Post author:Lady Kehveen Abernathy
  • Post published:December 21, 2015
  • Post category:Rare Disease/Tyrosinemia

There are actually three types of the disease called Tyrosinemia, but in this post, we're only going to focus on Type I. Tyrosinemia, type 1 (TYR 1) is a genetic disorder…

Continue Reading What Every New Mom Should Know About Tyrosinemia
What This Girl With EDS Can Do Will Make You Gasp

What This Girl With EDS Can Do Will Make You Gasp

  • Post author:Erica Zahn
  • Post published:December 21, 2015
  • Post category:Ehlers-Danlos Syndrome/Rare Disease

In the past, 14-year-old Louise Stewart-Scott, was used to flying through the air and across the mat during her gymnastic routines. But, at the age of eight, she was diagnosed…

Continue Reading What This Girl With EDS Can Do Will Make You Gasp
If You Have a Rare Disease, Now You Have a PAL

If You Have a Rare Disease, Now You Have a PAL

  • Post author:Patient Worthy Contributor
  • Post published:December 21, 2015
  • Post category:Rare Disease

We know that the cost of medical treatment, even with great insurance, is high. Transportation, parking, inability to work full-time because you are taking care of a very ill family…

Continue Reading If You Have a Rare Disease, Now You Have a PAL
Confessions of a Young Woman With Heart Fighting Myasthenia Gravis
Source: https://365daysofmyasthenia.wordpress.com/

Confessions of a Young Woman With Heart Fighting Myasthenia Gravis

  • Post author:James Ernest Cassady
  • Post published:December 21, 2015
  • Post category:Myasthenia Gravis/Rare Disease

Whether you think so or not, you have the strength to live well with Myasthenia Gravis (MG). But for your times of doubt and frustration, it can be helpful to have…

Continue Reading Confessions of a Young Woman With Heart Fighting Myasthenia Gravis

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