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Daily Archives: December 22, 2015

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Are You In Line for An Early Heart Attack? Check Your Cholesterol

Are You In Line for An Early Heart Attack? Check Your Cholesterol

  • Post author:Erica Zahn
  • Post published:December 22, 2015
  • Post category:Familial Hypercholesterolemia/Rare Disease

A recent report from the British Heart Foundation (BHF) stated many more people in the UK are at risk for early heart attacks than previously thought. The culprit? High cholesterol. And not the…

Continue Reading Are You In Line for An Early Heart Attack? Check Your Cholesterol

How To See Dysautonomia Like An Expert

  • Post author:EmpatheticBadass
  • Post published:December 22, 2015
  • Post category:Dysautonomia/POTS

Sometimes, when we're caught up in the fear and uncertainty caused by unexplained symptoms, we can forget that doctors aren't god-like machines. Even when you feed them the right data,…

Continue Reading How To See Dysautonomia Like An Expert
What Do You Need to Know About New Cystic Fibrosis Treatment?

What Do You Need to Know About New Cystic Fibrosis Treatment?

  • Post author:Alisha Stone
  • Post published:December 22, 2015
  • Post category:Cystic Fibrosis/Rare Disease

Okay, people in the CF Community, listen up! A new targeted treatment for Cystic Fibrosis (CF) may be on the horizon sooner vs. later, and I’m pretty freaking excited about it! This…

Continue Reading What Do You Need to Know About New Cystic Fibrosis Treatment?
Prepare to Be Shocked By This Woman’s CVID Diagnosis
You'll be shocked by this woman's (and many others') journey to a diagnosis.

Prepare to Be Shocked By This Woman’s CVID Diagnosis

  • Post author:EmpatheticBadass
  • Post published:December 22, 2015
  • Post category:CVID/Primary Immunodeficiencies

There really ought to be a Walk of Fame for people who have rare diseases. Possible categories might be: “Number of Misdiagnoses I Survived” or “Number of Doctors Who Thought…

Continue Reading Prepare to Be Shocked By This Woman’s CVID Diagnosis
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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