She Couldn’t Even Write a Comic, But Now Her Life Deserves To Be One

In an ordinary world, one girl faces an unexpected fight. 

Fated to take on the mantle passed down by her mother, she must defend her life against this incredible foe.

Will she deny her destiny and succumb to the struggle? 

Or will she face the odds and take back control of her life? 

You can only find the answer in DYSTONIA MOVES ME…. PART 1.

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Having a serious, chronic condition can make you feel weak sometimes. But when that happens, you need to flip the script—look at things from a new angle.

You know who else has serious weaknesses?

Superheroes.

So let’s all start re-imagining the dark times, not as low points, but as the necessary conflicts that force heroes toward greatness.

Heroes like Halie (aka HearMeRite).

Much like Clark Kent slinging news at The Daily Planet, Hali spends plenty of time posting on her blog featured on blogher.com, writing about life as a typical 25 year old girl. She covers anything from dating to the financial strain of wedding season.

Dystonia patient, Hali's, blog.
Here a few engaging topics Hali focuses on in her blog. Source: Blogher.com

But like the unsuspecting protagonist of every origin story, as a child, Hali’s life is interrupted by a strange sequence of events.

 “I remember just breaking down and crying and telling my parents my hands shook when I tried to write. My mom looked absolutely devastated.”

Soon, she’s thrust hands-first into a lifelong battle against a new nemesis: dystonia.

This battle has struggles and setbacks—from treatment failures to drinking problems. Worse, there’s no super-powered “Justice League of Dystonia” flying in with aid and easy answers.

Hali has had to rely on her own strength to carry on.

“Knowing (and finally fully admitting to myself) everything I was going through, I am unbelievably proud of myself.”

But like a good movie, Hali’s post ends on a cliffhanger. After years of treatment, we leave a 22 year-old Hali alone, on a fading scene of her agreeing to controversial brain surgery.

Unfortunately for readers, you’ll have to catch the next showing to see how that surgery turns out. While Hali has scripted Part 1 of her origins, Part 2 is still To Be Continued…

And if you’re looking for a “Justice League of Dystonia” in your own hero’s journey, try the Dystonia Medical Research Foundation. They may not have powers, but finding a community can save lives.


Kiki Jones

Kiki Jones

Kiki’s family loves to say, “People are like a baking project. At some point, they’re just done and they’re who they’re going to be.” Well, Kiki still has some baking to do, and she learns a lot from her loved ones living with chronic conditions, including mental illness and Behcet’s disease. With a BA in English, she’s using her skills to tell the stories of people like them.

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