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Daily Archives: January 20, 2016

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Que es el CPS? Una lesscion de la Vicepresidenta de la CPS Foundation

Que es el CPS? Una lesscion de la Vicepresidenta de la CPS Foundation

  • Post author:Patient Worthy Contributor
  • Post published:January 20, 2016
  • Post category:Rare Disease

Síndrome de dolor central es una enfermedad neurológica de toda la vida del sistema nervioso central, lo que provoca constantes, sin fin, señales de dolor agonizante de todos los tipos…

Continue Reading Que es el CPS? Una lesscion de la Vicepresidenta de la CPS Foundation
The Powerful Story of One Life with Cystic Fibrosis

The Powerful Story of One Life with Cystic Fibrosis

  • Post author:EmpatheticBadass
  • Post published:January 20, 2016
  • Post category:Cystic Fibrosis

A college class in solo performance, taken during his senior year, changed Brennen Reeve’s life. Why? It was the first time the now 24-year-old ever really shared his experiences with cystic…

Continue Reading The Powerful Story of One Life with Cystic Fibrosis
Little Boys Like This One Need You And Your Blood

Little Boys Like This One Need You And Your Blood

  • Post author:Lady Kehveen Abernathy
  • Post published:January 20, 2016
  • Post category:CGD

Three words: You are cured. That's what people with a chronic disease would give anything to hear. But the word "cure" isn't heard enough. In fact, people hardly hear it at…

Continue Reading Little Boys Like This One Need You And Your Blood
Hope: My Dystonia Survival Tool

Hope: My Dystonia Survival Tool

  • Post author:Tom Seaman
  • Post published:January 20, 2016
  • Post category:Dystonia/Rare Disease

  Living with dystonia is sometimes reminiscent of the plight of Sisyphus, a king from Greek mythology. Sisyphus was king of Ephyra who was punished for chronic deceitfulness and condemned…

Continue Reading Hope: My Dystonia Survival Tool
3 Easy Steps To Get Your Expensive Drugs from Big Pharma

3 Easy Steps To Get Your Expensive Drugs from Big Pharma

  • Post author:Alisha Stone
  • Post published:January 20, 2016
  • Post category:CAPS/Rare Disease

If you are a parent of a chronically ill child, there are a million things running through your head every single day—day in—and day out. Enter the parents of a…

Continue Reading 3 Easy Steps To Get Your Expensive Drugs from Big Pharma

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