Happy First Week of February!
Do you have a rare disease and find art as an outlet for you? Are you always fighting to find more ways to treat your rare disease in hopes of a better quality of life?
Kick back and relax! And let us know what you think about this week’s Editor’s Choice.
Check out Founder of CysticLife Ronnie Sharpe’s official press release about CysticLife’s partnership with Althea Health and the Mayo Clinic.
Together, we can improve the quality of life for so may with cystic fibrosis through patient driven research.
The non-profit Cystinosis Research Network (CRN) created the sponsored the “Dream, Achieve, Inspire” art exhibit.
Now, the exhibit has been traveling the world to bring much-needed awareness to cystinosis. Read more about these warriors here!
You are not going to want to miss this… The 2016 Acromegaly Community Bi-annual Meeting, April 29-May 1st!
Click here for more details about the event and get out there to support acromegaly awareness!
PW Contributor Lisa Douthit gives us a “How-to” guide in the world of rare disease.
As a cancer and auto-immune disease survivor, there’s no one better suited than her to give us some much needed advice in the world of Myasthenia Gravis.