Unlike some patients who’ve battled the disease since childhood, Saffron is struggling to come to grips with the near-constant dislocation of her joints.
Tasks most of us take for granted—like dressing, preparing a meal, or going to the bathroom—can leave Saffron in incredible pain or send her on a trip to the hospital.
But probably the worst part is how the disease impacts her children.
Saffron enjoys a moment of happiness with Eden, her son. Source: www.express.co.uk
“A cuddle from my kids is enough to leave my shoulder dislocated,”
Saffron says. As her condition rapidly declines, she’s had no choice but to start a liquid diet—chewing could dislocate her jaw—and a regimen of morphine and other medications to manage her pain.
By sharing her story, Saffron hopes to educate others about Ehlers-Danlos and get them to recognize the signs and symptoms earlier.
Beyond raising awareness, her top goal is spending as much time with her children as possible.
Go here to learn more about Ehlers-Danlos Syndrome. And let us know below what message of encouragement you’d send to Saffron!
After emigrating from his native Sweden, Ronald spent a stint in the Merchant Marines while trying to work out what he wanted to do with his life. He discovered a love of writing while helping a friend write anonymous Harry Potter fan-fiction online; he discovered meaning to his writing when he began journaling after an anxiety disorder diagnosis. Ronald is most relaxed when spending quiet time with his wife, two sons, and hyperactive cat.
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