Hello Again Patient Worthians!
This week we are highlighting part TWO of a story about a man with cystic fibrosis, racing for his non-profit RaceCF and to spread awareness of exercise therapy for those with CF.
We also have some detox/dieting thoughts on Sjögren’s, the basics of CVID and rare disease on TV!
So sit back and relax! And enjoy another week of Editor’s Choice.
[one_half]
[/one_half] [one_half_last]
Man with Cystic Fibrosis Races to Help Others – Part 2
Manny Goguen is 24 years old, living with CF and President of the NPO RaceCF.
What does RaceCF do for the CF community? Find out here!
[/one_half_last] [one_half]
The ABCs Of Common Variable Immunodefiency
If your child has been recently diagnosed with CVID, this article is a must-read.
Often times, when supporting those with rare disease, we ask: “What can I do to make it better?” This post will help you get to your answer!
[/one_half_last] [one_half]
Is A Vegan Diet The Best Way To Fight Sjögren’s Syndrome?
Being a celebrity with rare disease presents a unique chance to educate the population about your neglected condition.
Venus Williams has done just that with Sjögren’s Syndrome. She is on an anti-inflammatory, vegan diet that has yielded positive results. Could this work for others with her disease?
[/one_half_last] [one_half]
4 Times Grey’s Anatomy Featured Rare Disease and We Loved it
Do you ever watch TV and think “Wow, that’s me! I can totally relate to this situation!”
Well with Grey’s extreme drama, the relatability-factor is pretty low. However, they do feature rare disease a few times, which makes us think they might be more realistic than we once thought!
[/one_half_last]
