Hello Again Patient Worthians!
So sit back and relax! And enjoy another week of Editor’s Choice.[one_half]
Manny Goguen is 24 years old, living with CF and President of the NPO RaceCF.
What does RaceCF do for the CF community? Find out here![/one_half_last] [one_half]
If your child has been recently diagnosed with CVID, this article is a must-read.
Often times, when supporting those with rare disease, we ask: “What can I do to make it better?” This post will help you get to your answer![/one_half_last] [one_half]
Being a celebrity with rare disease presents a unique chance to educate the population about your neglected condition.
Venus Williams has done just that with Sjögren’s Syndrome. She is on an anti-inflammatory, vegan diet that has yielded positive results. Could this work for others with her disease?[/one_half_last] [one_half]
Do you ever watch TV and think “Wow, that’s me! I can totally relate to this situation!”
Well with Grey’s extreme drama, the relatability-factor is pretty low. However, they do feature rare disease a few times, which makes us think they might be more realistic than we once thought![/one_half_last]