MDS Patient & Family Forum June 25th in Birmingham, Alabama
Share this flyer with anyone you know suffering from myelodysplastic syndromes (MDS).
Continue Reading
MDS Patient & Family Forum June 25th in Birmingham, Alabama
Every Kid With Cystinosis Needs a Cool Aunt Like This
Here at Patient Worthy, we spill a lot of (virtual) ink talking about all aspects of living with a rare disease. Our goal is to be supportive and understanding, a…
Continue Reading
Every Kid With Cystinosis Needs a Cool Aunt Like This
How Aware Are You This Lyme Disease Awareness Month?
May is Lyme Disease Awareness Month. Read more here, be informed and learn how you can be a part of the solution.
Continue Reading
How Aware Are You This Lyme Disease Awareness Month?
Rob’s Acromegaly Symptoms and Surgery
Part of the symptoms, when you go back online and you look at some of the classic people that have acromegaly, the one that pops immediately is Andre the Giant.…
Continue Reading
Rob’s Acromegaly Symptoms and Surgery
Source: Pixabay.com
New Cystic Fibrosis Screening
In the world of diagnostics and treatment, change is usually a slow, gradual process. But so far, this is turning out to be a damn good year for anyone interested…
Continue Reading
New Cystic Fibrosis Screening
Photo Credit: rarediseaseday.org logo
Las manos elocuentes dicen mas que las palabras en este video sobre las Enfermedades Raras
Manos amigas pueden hacer cosas realmente sorprendentes. Eurodis, los campeones del Día de las Enfermedades Raras, demuestran esa idea en su vídeo sobre el Día de las Enfermedades Raras del…
Continue Reading
Las manos elocuentes dicen mas que las palabras en este video sobre las Enfermedades Raras
