This Amazing Little Boy Smiles in the Face of PH

This Amazing Little Boy Smiles in the Face of PH

On June 23, 201, a little boy named Jackson was born. He weighed in at a healthy seven pounds, three ounces, and was 20.5 inches long, and his parents were overjoyed.

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Everything seemed perfect. Source:

There was a slight scare during the first day when nurses couldn’t get an accurate oxygen reading, but that was soon resolved, and Jackson went home to begin his happy life.

Along the way,however, he began to have strange symptoms and during a check-up, the doctor thought he detected a slight heart murmur.

Ultimately, Jackson was diagnosed with pulmonary hypertension, or PH, which is a type of high blood pressure that affects the arteries in the lungs.

As a result, the right side of Jackson’s heart was enlarged.

Despite his condition, Jackson has never lost his smile. His mother stresses early detection of PH is the key to successful treatment.

Watch “Jackson’s Journey” and share your thoughts with Patient Worthy!

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.