Emotional support, someone telling you that they’re there for you and that things will be OK, shouldn’t be underestimated. It’s important to have someone to lean on when the going gets tough.
- Rare Disease News
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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!
