Alejandra Carasa arrived in the United States with one suitcase and a thirst for success. Cuban-born Alejandra has been living with T-cell cutaneous lymphoma, also known as mycosis fungoides (MF), since 1999. MF…
So I do not think doctors actually say that Fibrinogen Defiency and Glanzmann Thrombasthenia are medically or scientifically cousins, but when I was reading about them I realized that they are…
I read an article about a woman in China who chose to end her life so that her son, who suffers from ankylosing spondylitis (AS), could receive an insurance payout…
Emotional support, someone telling you that they're there for you and that things will be OK, shouldn't be underestimated. It's important to have someone to lean on when the going…
Julia Smith was diagnosed with Glanzmann thrombasthenia (GT) at the tender young age of six months through a series of fortunate events. First, her mother Helen, noticed her infant bruised very…
By 2013, 17 states plus the territory of Washington, DC legalized or formed legislation around medical marijuana. A study by the University of Georgia suggests that this change caused about a…
Lisa Marie Basile se da cuenta de que la vida con una enfermedad auto-inmune es frustrante. También tuvo un tiempo difícil conseguiendo un diagnóstico porque, como ella dice, "... muchos…
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