People with treatment-resistant epilepsy (TRE)—and especially parents of children with the severe form of epilepsy called Lennox-Gastaut syndrome—can easily become discouraged as they speed through a growing list of anti-seizure…
Paroxysmal nocturnal hemoglobinuria, or PNH, is a hematopoietic stem cell disorder. Hematopoietic stem cells are developed in the bone marrow, where they grow and eventually develop into red blood cells, white…
The Ice Bucket Challenge was a huge success for raising awareness and funding for ALS research. But this year, there is a new fundraising effort for the debilitating, neurodegenerative disease called…
Don't lose your optimism or courage and don't ever give up. Illness isn't easy, but don't let it steal from you.
Press release - 10th July 2016 PW Partner: Breathe With Me, Strawfie Challenge When Danielle Cartwright filmed her daughter Talia May taking her medication and proudly posted the video online,…
Having chronic Lyme pretty much means I am chronically fatigued, choking down so much food to try and gain energy from it, to no avail. But, I have gotten to…
Usted sabe que esos anuncios, "¿Qué haría usted para una barra de Klondike?" Piense acerca de eso, pero en vez de conseguir el helado se llega a jugar béisbol. ¿Qué…
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