Oh, the ’70s… there are some things we don’t miss about you at all, but one very good thing was the identification of Schnitzler syndrome. [Source: giphy.com]Patients usually have fever, bone and joint pain, fatigue, anemia, enlarged liver and spleen, and a strange rash. The rash is resistant to treatment, and can affect most parts of the body, but it comes and goes. New lesions tend to form, however. Patients rarely go for more than four weeks without the symptomatic rash. The initial medical intervention usually begins at a dermatologist’s practice.
At the Mayo Clinic, researchers noticed that patients weren’t being diagnosed appropriately because Schnitzler syndrome mimics other serious illnesses. The Mayo clinic has a specialized team that can properly diagnose the condition and offer specific therapies for the syndrome.
Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Sign Up For Our Patient Panel
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.