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Daily Archives: December 19, 2016

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This Mom Could Teach Us a Few Lessons About Raising Kids with JIA
Source: www.pixabay.com

This Mom Could Teach Us a Few Lessons About Raising Kids with JIA

  • Post author:Alisha Stone
  • Post published:December 19, 2016
  • Post category:Juvenile idiopathic arthritis/Rare Disease

The next time you’re having a crappy day, think of the 1000s of kids across the globe who are suffering because they have juvenile idiopathic arthritis (JIA). JIA is one…

Continue Reading This Mom Could Teach Us a Few Lessons About Raising Kids with JIA
This is the Most Stupendous New CRPS Development EVER!
Source: pixabay.cm

This is the Most Stupendous New CRPS Development EVER!

  • Post author:EmpatheticBadass
  • Post published:December 19, 2016
  • Post category:Complex Regional Pain Syndrome/Rare Disease

When you’re dealing with the intense, unrelenting pain of complex regional pain syndrome (CRPS), patience can wear more than a wee bit thin. Also, it’s hard to concentrate when dealing…

Continue Reading This is the Most Stupendous New CRPS Development EVER!
Holidays Are Not for Pulling Out Your Hair

Holidays Are Not for Pulling Out Your Hair

  • Post author:Kristen Lord
  • Post published:December 19, 2016
  • Post category:Rare Disease

Happy Holidays! Many people spend their time running around trying to bake as much as they can, buy and wrap as many presents as they can, go to as many…

Continue Reading Holidays Are Not for Pulling Out Your Hair
Gut Health and AS: What You Need To Know
Source: pixabay.com

Gut Health and AS: What You Need To Know

  • Post author:Donald Blake
  • Post published:December 19, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

Could the microbes and flora of your stomach be responsible for the lower back pain you’ve suffered from since your college years? If the latest studies are any indication, your…

Continue Reading Gut Health and AS: What You Need To Know
How to Turn Cutaneous T-Cell Lymphoma (CTCL) Into Success
Source: Pexels.com

How to Turn Cutaneous T-Cell Lymphoma (CTCL) Into Success

  • Post author:Sabina Kennedy
  • Post published:December 19, 2016
  • Post category:mycosis fungoides/Rare Disease

Most of us know what it is like to have bad news come our way. And in the course of life, all of us will feel the sting of news…

Continue Reading How to Turn Cutaneous T-Cell Lymphoma (CTCL) Into Success
Virtual Scleroderma Support Group Tomorrow!
kaboompics / Pixabay

Virtual Scleroderma Support Group Tomorrow!

  • Post author:Rebekah
  • Post published:December 19, 2016
  • Post category:Systemic Scleroderma

 At 2pm Eastern Time on Tuesday, December 20th there will be a Scleroderma support group hosted by The Scleroderma Foundation's Tri-State Chapter. Anyone suffering from Scleroderma or anyone who loves somebody…

Continue Reading Virtual Scleroderma Support Group Tomorrow!
The Secrets of Being a Woman with Von Willebrand
Source: pixabay.com

The Secrets of Being a Woman with Von Willebrand

  • Post author:PW Blogger
  • Post published:December 19, 2016
  • Post category:Rare Disease/Von Willebrand's Disease

Most people have become a little annoyed over all the strange news about the Presidential Election. I do think that many hot social issues have come up despite all the nonsense. Our country has…

Continue Reading The Secrets of Being a Woman with Von Willebrand
Doctores, enfermeras, y el ser un paciente

Doctores, enfermeras, y el ser un paciente

  • Post author:Patient Worthy Contributor
  • Post published:December 19, 2016
  • Post category:CAPS/FCAS/POTS/Rare Disease

'' Mover a la costa oeste ha sido tan divertido; Tenía mi pueblo, mi equipo de vuelta al este. Tuvimos una clara mano corta y tengo la suerte de que…

Continue Reading Doctores, enfermeras, y el ser un paciente

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