Donald Blake has a BS in Communication Studies. He has a lengthy tenure in the healthcare, media and education fields. He is dedicated to improving the lives of those with rare diseases through his knowledge of healthcare and communications.
A woman from the UK, whose husband was diagnosed with Parkinson's disease many years ago, has the unique distinction of being able to detect the disease in patients through a…
Multiple sclerosis (MS) patients in the United States and other countries around the world are trekking to Russia to undergo a controversial treatment for the neurological disorder that some researchers…
Jordy Cernik isn't afraid of anything. It's not that he has some kind of super ability that makes him fearless or special secret agent training that defies normal reactions to…
A year after being approved as the first new treatment for amyotrophic lateral sclerosis (ALS) in 22 years, Radicava is altering the way physicians treat the illness, which is also known…
In data presented earlier this month in San Diego at the 2017 American College of Rheumatology Annual Meeting, researchers noted that female patients with psoriatic arthritis had significantly higher rates of…
Patients with juvenile idiopathic arthritis (JIA) who used a program to receive health education and help in taking the lead in their own disease management is winning praises for its…
In a press release, CURE Media Group announced the development of a 13-part series on carcinoid syndrome. A series of discussions involving both doctors and patients educating patients, caregivers and…
According to a new study, pregnant women with high levels of cortisol and high blood pressure may have Cushing's disease. Although Cushing's is rare during a woman's pregnancy, the conclusion…
A recent study published online at JAMA Neurology, provides evidence that exercise is not only safe for Parkinson's disease, but may also hold the key to stopping the advancement of…
According to a story from Ankylosing Spondylitis News, treatment of chronic pain is always a difficult task for health care professionals. Patients with ankylosing spondylitis (AS) are especially prone to…
Migraines are not on the usual list of symptoms of multiple sclerosis (MS), but researchers know that, for many MS patients, migraines are somehow associated with this neurological disease…
No one should outlive their child. Losing two children to the same rare disease is a pain that most parents can never understand and hopefully never will. According to a…
May is Lyme disease awareness month. Responding to an explosion in Lyme disease and tick-borne illnesses, the Tick-Borne Disease Working Group met for the first time in Washington, D.C. in…
Duchenne Muscular Dystrophy (DMD) is the most common type of the 9 types of muscular dystrophy. It is a genetic disorder that causes muscle degeneration and weakness. It is a…
On February 13th, the U.S. FDA announced the approval of Symdeko, a novel combination of two previously used agents to treat cystic fibrosis (CF). Symdeko combines a drug that has been…
Matt Millen played linebacker in the NFL for 12 seasons. He was a tough competitor and won 3 Super Bowl rings. For eight years, he was the General Manager…
Narcolepsy is a rare disease subject to many misperceptions and false assumptions. All of that misinformation belies the fact that narcolepsy is a serious neurological disorder, with symptoms that can…
According to a story from Harvard Health Publishing, a common problem with the upper chambers of the heart which cause the heart to pump inefficiently may be made less severe…
He was billed as "The 8th Wonder of the World," and this month a new documentary on the legendary WWE wrestler, André the Giant, premiered on cable outlet HBO. According…
Imagine not being able to eat because you cannot swallow your food. Add to that intolerable pain and the inability to sleep at night. These are some of the symptoms…
It's a parent's worst nightmare-- a rare disease that strikes early in life, and without treatment, can cause a patient's death. Tyrosinemia type 1 (TYR1), is a form of a…
The Health eHeart Study was released on March 21st at the JAMA Cardiology website. The study investigates wearable technology and its ability to detect a common heart rhythm irregularity called atrial fibrillation (AF).…
According to a study published in the journal Nature Communications, a very common form of ovarian cancer may actually find its beginnings in the fallopian tubes, the tube that eggs…
If you have a close relative with Myasthenia Gravis (MG), you run a greater risk than the average population of being diagnosed with it. Additionally, you have a greater risk…
A story published on ESPN.com, and written by Jackie MacMullan, details NBA Hall of Fame inductee Nate "Tiny" Archibald's diagnosis of the rare disease amyloidosis. Amyloidosis occurs when a substance called amyloid builds…
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