Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: December 23, 2016

  1. Home>
  2. 2016>
  3. December>
  4. 23
Editor’s Choice: Merry Christmas and Happy Hanukkah!

Editor’s Choice: Merry Christmas and Happy Hanukkah!

  • Post author:Patient Worthy Contributor
  • Post published:December 23, 2016
  • Post category:Cystic Fibrosis/Dysautonomia/Dystonia/Myasthenia Gravis/POTS/Rare Disease

Happy Christmas/Hanukkah/Holiday break Patient Worthians! This week, we are highlighting our amazing contributors for all of their heartfelt and honest stories. One post is about how to stay out of…

Continue Reading Editor’s Choice: Merry Christmas and Happy Hanukkah!
Happy Christmahanakwanzika to All!

Happy Christmahanakwanzika to All!

  • Post author:Kristen Lord
  • Post published:December 23, 2016
  • Post category:Rare Disease

Yes, it is the season of holidays. Happy Christmahanakwanzika! Or whichever holiday you celebrate! I hope you experience peace, love and joy this season.

Continue Reading Happy Christmahanakwanzika to All!

The Top 5 Ways to Stay Out of the Hospital During the Holidays

  • Post author:Patient Worthy Contributor
  • Post published:December 23, 2016
  • Post category:Myasthenia Gravis

The holidays are a time of fun, family, and for many of us, a time when our chronic health conditions tend to flare up. We don’t mean for that to…

Continue Reading The Top 5 Ways to Stay Out of the Hospital During the Holidays
Mom Defies JIA to Keep the Christmas Spirit Alive for Her Family
Source: www.pixabay.com

Mom Defies JIA to Keep the Christmas Spirit Alive for Her Family

  • Post author:Alisha Stone
  • Post published:December 23, 2016
  • Post category:Juvenile idiopathic arthritis/Rare Disease

‘Tis the season for caring and sharing, and I know of no other mother and family who need it more—not just compassion and care, but also effective treatments for her…

Continue Reading Mom Defies JIA to Keep the Christmas Spirit Alive for Her Family
¿Qué le dirías a este individuo con fibrosis quística?
https://pixabay.com/en/computer-pc-workplace-home-office-1185626/

¿Qué le dirías a este individuo con fibrosis quística?

  • Post author:Patient Worthy Contributor
  • Post published:December 23, 2016
  • Post category:Cystic Fibrosis/Rare Disease

En el sitio web fabuloso estilo de vida Fundación de Fibrosis Quística, blogger Brian Callanan ha emitido una llamada a la acción. Él quiere saber de todos ustedes si usted…

Continue Reading ¿Qué le dirías a este individuo con fibrosis quística?

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info