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Daily Archives: December 28, 2016

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This Amazing CF Momma Will Inspire You!

This Amazing CF Momma Will Inspire You!

  • Post author:PW Blogger
  • Post published:December 28, 2016
  • Post category:Cystic Fibrosis/Rare Disease

It is always so heartwarming to read a great story. Especially, when someone beats the odds and overcomes something tremendous. Nicole Kelly's parents did not think they would see their…

Continue Reading This Amazing CF Momma Will Inspire You!
Why Are Doctors Excited by This T-Terrific PF Discovery?
Source: pixabay.com

Why Are Doctors Excited by This T-Terrific PF Discovery?

  • Post author:EmpatheticBadass
  • Post published:December 28, 2016
  • Post category:Idiopathic Pulmonary Fibrosis/IPF/Rare Disease

The Model-T. T-Shirts. T-Rex. Lots of really good and/or interesting things feature the letter T and a hyphen—including, if you have pulmonary fibrosis (PF), rare T-cells. Pulmonary fibrosis literally means…

Continue Reading Why Are Doctors Excited by This T-Terrific PF Discovery?
Shocking Ways Transgenic Animals Will Make HAE Better
Source: pixabay.com

Shocking Ways Transgenic Animals Will Make HAE Better

  • Post author:Sabina Kennedy
  • Post published:December 28, 2016
  • Post category:HAE/Rare Disease/Timely

Do you ever you read a headline and do a double take? The “what the hell did I just read” head shake combined with the eye squint—just in case you…

Continue Reading Shocking Ways Transgenic Animals Will Make HAE Better
This Band Wants You to Help Spread the Word About CRPS
Source: Pexels.com

This Band Wants You to Help Spread the Word About CRPS

  • Post author:Erica Zahn
  • Post published:December 28, 2016
  • Post category:Complex Regional Pain Syndrome/Rare Disease

'Tis the season to help those in need. Complex regional pain syndrome, or CRPS, can be so severe, it drives some people to desperate ends. It usually starts with an…

Continue Reading This Band Wants You to Help Spread the Word About CRPS
Tratamiento para la Fibrosis quística gana el premio de avance médico
Pixabay

Tratamiento para la Fibrosis quística gana el premio de avance médico

  • Post author:Patient Worthy Contributor
  • Post published:December 28, 2016
  • Post category:Cystic Fibrosis/Rare Disease

Como usted probablemente sabe por ahora, este mes, PatientWorthy se ha unido a CysticLife.org para difundir el conocimiento de la FQ y apoyar su colaboración con la Clínica Mayo para…

Continue Reading Tratamiento para la Fibrosis quística gana el premio de avance médico

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