Rare disease living comes with its own set of highs and lows. Experiencing a myasthenia gravis crisis can be a terrifying ordeal.
And not just for the person with myasthenia gravis (MG), but for their loved ones as well.
If you’re not sure what I’m talking about, Lisa Douthit bravely talks about her experience with MG and tips for navigating an MG Crisis here.
Myasthenia gravis is a rare autoimmune disorder that affects the neuromuscular system. More specifically, it affects how the nerves interact with the muscles. Myasthenia gravis can present differently in individuals, and just like many rare autoimmune diseases, it can be difficult to diagnose.
This was the case with one of my own family members. It took the doctors over a year and a half to diagnose him.
It’s frustrating and scary to not know what’s happening to your body and feel like you can’t control it anymore.
Fortunately, MG can be managed relatively well, and most MG patients can lead a fairly normal life. It can be difficult not to panic when you feel like you can’t breathe or talk–understandably so!
Listening to your body and knowing when to rest are essential steps to help avoid a crisis. As Lisa says, “Prevention is the best treatment.”
Learn more about Lisa’s tips here.
