The courage and persistence to keep going, past hurdles and obstacles, is powered by purpose, and for one woman living with Pompe disease, her purpose is to overcome barriers to…
If you are considering having children, it’s wise to consult with a genetic counselor for screening and testing before conception. Here’s why: there is a plethora of deadly and/or seriously…
Life can be overwhelming, especially when living with complex regional pain syndrome (CRPS). The continual pressure to look good, to perform well, and to compete for wealth and affection creates…
When a fetus inherits a mutated copy of the TFAP2B gene, the development of the heart, face and arms and legs is affected. As a result, when the infant is…
Here at Patient Worthy, we believe in the power of patients. We know that sometimes information you get from someone who shares your disease is exactly the information you need. Hearing another…
Si usted o su ser querido está viviendo con hipercolesterolemia familiar homocigota (HFH), que va a estar encantados con esta noticia - y se lo merece, también! La Fundación Defensor…
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