How an EB Bucket List Can Get You Your Heart’s Desire
Maybe we should chart our own course in life like one sweet baby girl who was born with a rare skin disease called Epidermolysis Bullosa. Little Joella lives with the…
Maybe we should chart our own course in life like one sweet baby girl who was born with a rare skin disease called Epidermolysis Bullosa. Little Joella lives with the…
The above photo is of Kristina by Sandro Georgi Photography. Check out Kristina's story of living with narcolepsy by clicking here. If you visit Patient Worthy or our Facebook page, then…
You may remember AS warrior Charis from our interview entitled "Move Over Barbie. This is the Model Little Girls Should Idolize". She discussed her journey with Ankylosing Spondylitis, detailing her…
For the last one and a half years, I’ve been taking a mindfulness meditation class to help reduce stress and have recently “graduated” to a master class, which I’m enjoying and…
Back in 2012, the Minnesota Department of Health published a helpful fact sheet on methylmalonic acidemia (MMA). What I liked about it is that it’s very straightforward and to the…
Este es el escenario: una mujer y un hombre entran a la sala de emergencia con los mismos síntomas. Ambos tienen un terrible dolor en la región abdominal. El hombre…