Trigeminal neuralgia (TN) is the type of disease you wouldn't wish on anyone. It's characterized by extreme pain in the trigeminal nerve, which innervates the face. It's often described as…
They say you have to suffer for your art-- this actor and director took that literally. Shooting a major feature film is exhausting work. Salman Khan, a huge name in…
Renee Smith deals with an unusual feeling and she might be the only person who does. She feels like there are drops of water dripping on the side of her…
Karen McLaughlin's exhibition Critical Path, hangs in at the Martin Batchelor Gallery until November, 30th. Her exhibit includes a combination of soft graphite drawings and bolder pastel renderings. The work is delicate,…
Trigeminal neuralgia (TN), or extreme, sudden facial pain associated with the 5th cranial nerve, occurs frequently in patients who have received a multiple sclerosis (MS) diagnosis. In a survey with 8,590 respondents,…
Those who have received the diagnosis of trigeminal neuralgia can experience sudden pain in the jaw, cheeks, and forehead. This pain can last seconds to a few minutes. Some people with…
Annually, 13 out of 100,000 people are diagnosed with trigeminal neuralgia. Trigeminal neuralgia is described as a sharp and intense pain that can occur in the face or mouth. The…
These days Frank drives around to help others with trigeminal neuralgia. He seeks to raise awareness while comforting those who are living with the condition. Before Frank was diagnosed, he…
This year, there were about 5,000 runners in the Myrtle Beach Marathon. Trigeminal neuralgia (TN) didn't stop Greenville, North Carolina’s Melvin Coleman from being among those who ran relay races,…
Storytelling holds immense power and, thus, is one of the best ways to raise awareness of rare diseases. Hanna Smith has a career as a journalist. Over the years, she has interviewed people…
Happy Friday Patient Worthians! Did you know it was World PI Week this week? We have a post on the role pets have with PI. We also have a story on a…
Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor suffering from TN, dysautonomia and…
Ever wonder what it’s like to be so sick and disabled that you can’t live a normal life but you aren’t sick or disabled enough to actually be considered disabled?…
Happy Friday Patient Worthians! What do you know about sickle cell anemia? We have seven facts for you! Also, we have some hope-worthy nonalcoholic steatohepatitis (NASH) news to report. What does…
At first the running was exercise, a way to lose a few pounds. Running soon became the way Beth Markesino forgot her diagnosis of trigeminal neuralgia (TN) – the way…
Trigeminal neuralgia is a chronic disease characterized by a sudden severe pain in the face, which can be unpredictable and last for few seconds up to a minute. These painful…
For the last one and a half years, I’ve been taking a mindfulness meditation class to help reduce stress and have recently “graduated” to a master class, which I’m enjoying and…
Just over a week until Christmas and Hanukkah everyone! I am counting down the days until the celebrations begin with friends and family, which albeit can be stressful with chronic…
Okay, I’m about to start this article with a very microcosmic example of a much larger medical solution. A couple of weeks ago, I was following Ray Charles’ lead and…
I found an interesting article about Trigeminal Neuralgia (TNA) which was a real eye-opener for me, and I’d like to share the highlights with you. If you or your loved…
You never know what you're going to learn on any given day, which is part of what makes life so interesting. Here's an example: I was sitting at the gate…
So, it’s Friday afternoon, and you’re at work in a crammed meeting room. You’re looking forward to dinner with some friends. Only two more hours to go. All you’ve gotta…
Are you a person living with trigeminal neuralgia (TN)? Are you aware of the Facial Pain Association (FPA)? Well, you should be. This organization is incredible!! Focused on people with TN, this…
Looking for great ways to raise awareness (and, therefore, money) for trigeminal neuralgia? Light up your teal lights? TEAL lights…. as in the color. ‘Cuz if pink worked wonders for…
© Copyright Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
