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Daily Archives: January 24, 2017

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Warning! Don’t Miss Out on JIA Online Support
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Warning! Don’t Miss Out on JIA Online Support

  • Post author:Sabina Kennedy
  • Post published:January 24, 2017
  • Post category:Juvenile idiopathic arthritis

The history of the world stands on the importance of community. No sole genius alters the pages of time without some kind of support group, and the Parent Stories from…

Continue Reading Warning! Don’t Miss Out on JIA Online Support
You Should Read This Woman’s Narcolepsy Confessions
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You Should Read This Woman’s Narcolepsy Confessions

  • Post author:Erica Zahn
  • Post published:January 24, 2017
  • Post category:Narcolepsy/Rare Disease

I met a woman at a patient conference last year who confided she had just been diagnosed with narcolepsy. She said because she knew next to nothing about the disorder, she…

Continue Reading You Should Read This Woman’s Narcolepsy Confessions
Rockers Stirred Up the POTS Benefit for South Carolina Teen
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Rockers Stirred Up the POTS Benefit for South Carolina Teen

  • Post author:Erica Zahn
  • Post published:January 24, 2017
  • Post category:Dysautonomia/POTS

Postural orthostatic tachycardia syndrome does not exactly roll off the tongue, so most people refer to it as POTS. It's characterized by a sudden change of blood pressure that happens…

Continue Reading Rockers Stirred Up the POTS Benefit for South Carolina Teen
How an MDS Donor Makes Life Better
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How an MDS Donor Makes Life Better

  • Post author:Sabina Kennedy
  • Post published:January 24, 2017
  • Post category:Myelodysplastic syndromes

How do you feel about your life today? Are you living every day in exuberance? Do you love what you’re doing? Are you excited every single moment? Are you looking…

Continue Reading How an MDS Donor Makes Life Better
Find Out How a POTS Dreamer Becomes the Best!
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Find Out How a POTS Dreamer Becomes the Best!

  • Post author:Sabina Kennedy
  • Post published:January 24, 2017
  • Post category:Dysautonomia/POTS/Rare Disease

If we can accomplish big dreams, why wouldn’t we go after them? Just like Hannah Aspden of Raleigh, who was born without her left leg and lives with postural orthostatic…

Continue Reading Find Out How a POTS Dreamer Becomes the Best!
El destino de este hombre atrevido: distonía y Tenis
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El destino de este hombre atrevido: distonía y Tenis

  • Post author:Patient Worthy Contributor
  • Post published:January 24, 2017
  • Post category:Dystonia/Rare Disease

¿Quién sabía que la distonía y tenis van mano a mano ?! Por veinte años de edad, Josh, es un partido en el cielo. Él ha estado fascinado con tenis…

Continue Reading El destino de este hombre atrevido: distonía y Tenis

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