10 Cosas EDS me ha Enseñado
10 Cosas que he aprendido de vivir con el síndrome de Ehlers-Danlos 1. No es tan malo ser espontáneo Cuando era más joven tenía planes y listas para toda…
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10 Cosas EDS me ha Enseñado
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Wilson Disease: Don’t Judge Me Because I Look Drunk
Alicia Goss is a college student, and for a long time she didn't know she had a rare condition called Wilson disease. She just wanted to go out and have…
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Wilson Disease: Don’t Judge Me Because I Look Drunk
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Painting Through the Pain: Young Artist Expresses Her Experience with Behcet’s Disease
When Megan Howard looked down at her completed drawing, colorful lines intersecting to form odd shapes, she saw elements of “The Scream.” She thought it a fitting depiction of her…
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Painting Through the Pain: Young Artist Expresses Her Experience with Behcet’s Disease
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Support Groups: We Love ‘Em! Do You?
I’ve found that people feel very differently about support groups for their diseases, including narcolepsy. Some seek them out. Others avoid them at all costs. Some might not like the…
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Support Groups: We Love ‘Em! Do You?
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Man With Duchenne Muscular Dystrophy Launched a TIE-tanic Campaign
One tie, two ties, red tie, blue tie... The list goes on and on for Doug Robins, a young Australian man who’s raising awareness for Duchenne muscular dystrophy (DMD) by…
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Man With Duchenne Muscular Dystrophy Launched a TIE-tanic Campaign
