Editor’s Choice: New MS Drug Approved, Narcolepsy Realities and Building a CF Team

Welcome back Patient Worthians! This week we have some exciting news for the MS community. Additionally, we have some great tips on how to build your CF dream team. Also,…

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Murder in the Royal Family: How Researchers Discovered Hemophilia in Queen Victoria’s Bloodline
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Murder in the Royal Family: How Researchers Discovered Hemophilia in Queen Victoria’s Bloodline

Royalty, murder, lots and lots of blood – sounds like elements from the plot of a Victorian-era thriller. Actually, this story comes straight from hemophilia history. Science Magazine published a…

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Not-So-Mad Scientist Tests LEMS Treatments on Himself
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Not-So-Mad Scientist Tests LEMS Treatments on Himself

The image of a scientist conducting research on himself is a plot element in most superhero stories, as well as the classic Robert Louis Stevenson novella Strange Case of Dr.…

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Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art
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Artist Turns His Experience with Facial Dystonia Into Stunning Works of Art

The artist's medium? Wood, mirrors, and various other materials. His art? Jarring and beautiful headpieces—Tiago Valente's way of understanding his own experience with dystonia. Tiago called it facial dystonia, and from…

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Arthritis Doesn’t Just Affect Adults: Stories from Kids with JIA
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Arthritis Doesn’t Just Affect Adults: Stories from Kids with JIA

He wrestles, plays football and enjoys the day-to-day activities many 14-year-old boys would. Unlike many 14-year-olds, Drake was diagnosed with SoJIA, or systemic-onset juvenile idiopathic arthritis. “I have yet to…

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Get Ready for the 5th Annual Dysautonomia International Conference!
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Get Ready for the 5th Annual Dysautonomia International Conference!

Have you ever felt woozy when you stood up? And maybe it was so bad you actually fainted. One possibility is you have a form of dysautonomia called postural orthostatic…

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