10 Cosas que he aprendido de vivir con el síndrome de Ehlers-Danlos 1. No es tan malo ser espontáneo Cuando era más joven tenía planes y listas para toda…
Alicia Goss is a college student, and for a long time she didn't know she had a rare condition called Wilson disease. She just wanted to go out and have…
When Megan Howard looked down at her completed drawing, colorful lines intersecting to form odd shapes, she saw elements of “The Scream.” She thought it a fitting depiction of her…
I’ve found that people feel very differently about support groups for their diseases, including narcolepsy. Some seek them out. Others avoid them at all costs. Some might not like the…
One tie, two ties, red tie, blue tie... The list goes on and on for Doug Robins, a young Australian man who’s raising awareness for Duchenne muscular dystrophy (DMD) by…
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