What One CF Resource Can Teach You About Voice
Loneliness and lack of social support can make a person feel overwhelmed, so I felt hopeful when I came across this cystic fibrosis (CF) website for kids. Children living with…
Loneliness and lack of social support can make a person feel overwhelmed, so I felt hopeful when I came across this cystic fibrosis (CF) website for kids. Children living with…
I read a pretty cool short and sweet article that you need to check out, written by a person who is living with narcolepsy. I’m so impressed by how well…
One of the hardest parts of being diagnosed with a strange condition you’ve never heard of—like Idiopathic Pulmonary Fibrosis (IPF)—is just getting your arms around what the hell it is…
To read our primer on Hemophilia, click here and to read our primer on von Willebrand click here. These next three bleeding disorders - grouped under the header "Platelet Disorders" -…
Fear of the unknown is a feeling we’ve all faced at some point. I liken it to standing at the edge of a cliff with nothing but a fathomless crevasse…