Editor’s Choice: Events on Events on Events! Help Raise Sjogren’s Awareness and BOS Awareness

Happy Friday Patient Worthians!

April is Sjogren’s Awareness Month! There was also a whole day dedicated to Bohring-Opitz Syndrome. The MDS Foundation has another upcoming event as well.

Lastly, last month was Bleeding Disorders Awareness Month and in honor of that, we want to highlight the unique difficulties of having hemophilia as a woman.

So sit back and enjoy this week’s Editor’s Choice!



April is Sjogren’s Awareness Month!

Among other rare diseases, Sjogren’s is one whose awareness month is happening now!

Find out how you can support the cause here.

Don’t Forget to Wear Denim and Gold Tomorrow for Bohring-Opitz Syndrome Awareness Day!

Yesterday was BOS Awareness Day and we have some info on the activities surrounding it.

Read here to find out more.

Upcoming Free MDS Forum

PW Partner the MDS Foundation is making a free forum available for patients and support persons.

Will you be attending?

Challenges of Being a Girl with Hemophilia

Having a bleeding disorder is difficult regardless of gender.

But women have a few specific challenges unique to them. Click here to learn more.

Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

Share this post

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

© Copyright Patient Worthy

Close Menu