Could Gene Editing Help with Bainbridge-Ropers Syndrome and Other Rare Diseases?
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Could Gene Editing Help with Bainbridge-Ropers Syndrome and Other Rare Diseases?

It doesn’t seem possible to have a conversation these days without it devolving into some sort of partisan shouting match will little hope of resolution. Issues that we might think…

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Editor’s Choice: Events on Events on Events! Help Raise Sjogren’s Awareness and BOS Awareness

Happy Friday Patient Worthians! April is Sjogren's Awareness Month! There was also a whole day dedicated to Bohring-Opitz Syndrome. The MDS Foundation has another upcoming event as well. Lastly, last month…

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Don’t Forget to Wear Denim and Gold Tomorrow for Bohring-Opitz Syndrome Awareness Day!
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Don’t Forget to Wear Denim and Gold Tomorrow for Bohring-Opitz Syndrome Awareness Day!

Tomorrow is Bohring-Opitz Syndrome (BOS) Awareness Day! If that illness doesn't sound familiar to you - you're not alone. BOS is a very rare disorder; so rare that estimates number at…

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