Boy With ROHHAD Has Precious Wish Granted by Kind Farmer

I recently wrote about an 11-year-old Canadian girl who has an extremely rare disease called rapid-onset obesity with hypoventilation, hypothalmic dysfunction and autonomic dysregulation, or ROHHAD.

There are roughly 100 people in the world with this condition, so I was really surprised to find an article about another Canadian child, six-year-old Jaxon Garnier, who also has the disease.

The prognosis for children with ROHHAD isn’t promising because the condition ultimately affects the respiratory system, so Jaxon’s parents helped him write a bucket list of things he’d like to see, do, or experience, and they’ve been helping him check things off, one by one.

Number 13 on Jaxon’s list was visiting baby pigs.

A local farmer named Scot Redford was more than happy to make this wish come true. On a winter day in January, Jaxon’s parents drove him to the farm where he was met by Scot Redford. All of a sudden, Jaxon was rushed by the piglets, much to his delight! He spent quite a lot of time petting the animals, and learning about how they live on the farm.

This is an example of how a little kindness can go a long way. Scot Redford made a big difference in the life of a sick little boy. If you would like to contribute to GoFundMe account for Jaxon’s medical care, click here. You kindness will go a long way, too.


Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

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