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Daily Archives: August 2, 2017

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Will This Sickle Cell Research Help Cure ADA SCID?
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Will This Sickle Cell Research Help Cure ADA SCID?

  • Post author:Al Pendleton
  • Post published:August 2, 2017
  • Post category:Adenosine Deaminase Deficiency /SCID/Sickle cell anemia

At some point in the past, we decided that it would be important to divide things up when we study them in school. For a long time, all science was…

Continue Reading Will This Sickle Cell Research Help Cure ADA SCID?
New Study Links Gaucher Disease Type III to Behavioral Problems
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New Study Links Gaucher Disease Type III to Behavioral Problems

  • Post author:Al Pendleton
  • Post published:August 2, 2017
  • Post category:Gaucher Disease/Rare Disease

We’ve all been there. In the grocery store or at the mall or at the amusement park, when a child starts to act out, much to the chagrin of the…

Continue Reading New Study Links Gaucher Disease Type III to Behavioral Problems
Look No Further: We Have All the Latest in the Marginal Zone Lymphoma Community
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Look No Further: We Have All the Latest in the Marginal Zone Lymphoma Community

  • Post author:Sarah Lau
  • Post published:August 2, 2017
  • Post category:Marginal Zone Lymphoma/Rare Disease

There’s a lot that the marginal zone lymphoma community needs, but there is also a lot being said. Results from clinical trials are coming in, and patient testimonials are shedding…

Continue Reading Look No Further: We Have All the Latest in the Marginal Zone Lymphoma Community
This August 13-19, Celebrate the Unsung Heroes of Healthier Communities

This August 13-19, Celebrate the Unsung Heroes of Healthier Communities

  • Post author:Minden Cantrell
  • Post published:August 2, 2017
  • Post category:Rare Disease

Our nation's public health centers are the unsung heroes of health care. Each year, more than 9,000 health centers around the U.S. serve over 25 million Americans, including 300,000 veterans,…

Continue Reading This August 13-19, Celebrate the Unsung Heroes of Healthier Communities
The Cystic Fibrosis World Has Been Busy with These Breaking News Stories
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The Cystic Fibrosis World Has Been Busy with These Breaking News Stories

  • Post author:Athena Lee
  • Post published:August 2, 2017
  • Post category:Cystic Fibrosis/Rare Disease

There's a lot happening in the cystic fibrosis world, so here's the latest scoop. Cystic fibrosis (CF) is a genetic disease that causes progressive and constant lung infections as well as…

Continue Reading The Cystic Fibrosis World Has Been Busy with These Breaking News Stories
Does This Bacteria Cause Sarcoidosis?
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Does This Bacteria Cause Sarcoidosis?

  • Post author:Athena Lee
  • Post published:August 2, 2017
  • Post category:Rare Disease/Sarcoidosis

A recent study found that a specific bacteria may be the distinguishing factor between cardiac sarcoidosis and other conditions that affect the heart. This data suggests that this bacteria may…

Continue Reading Does This Bacteria Cause Sarcoidosis?
The Intangible Costs of Thrombocytopenia Therapy
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The Intangible Costs of Thrombocytopenia Therapy

  • Post author:Al Pendleton
  • Post published:August 2, 2017
  • Post category:Rare Disease/Thrombocytopenia

They say, “Necessity is the mother of invention.” This maxim goes for everything from nuclear technology (the Manhattan Project was a direct result of World War II) to the Snuggie®…

Continue Reading The Intangible Costs of Thrombocytopenia Therapy
Are Overachievers More Likely to Die from Parkinson’s and ALS?

Are Overachievers More Likely to Die from Parkinson’s and ALS?

  • Post author:Minden Cantrell
  • Post published:August 2, 2017
  • Post category:Parkinson's Disease

Parkinson's disease (PD) and amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig's disease) are both neurodegenerative conditions that have no one definitive cause—though there are risk factors linked to…

Continue Reading Are Overachievers More Likely to Die from Parkinson’s and ALS?

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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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