The Good, the Bad, the Ugly: Talking about Every Aspect of Your Rare Disease
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The Good, the Bad, the Ugly: Talking about Every Aspect of Your Rare Disease

As I was reading a post about Ehlers-Danlos syndrome on Stanford Medicine's Scope blog, a particular line caught my eye. The author of the post writes about "the moment [EDS patients] open our eyes…

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It’s Not Too Late to Register for This Dystonia Event in Rhode Island!
Source: Pixabay

It’s Not Too Late to Register for This Dystonia Event in Rhode Island!

Spasmodic Torticollis/Dystonia or ST/Dystonia, is a non-profit organization whose aim is to support patients suffering from ST, also referred to as cervical dystonia. Dystonia involves involuntary muscle contractions that may…

Continue Reading It’s Not Too Late to Register for This Dystonia Event in Rhode Island!