Help Manage Chronic Kidney Disease During the Holiday Feast in 6 Steps
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Help Manage Chronic Kidney Disease During the Holiday Feast in 6 Steps

This year’s typical holiday dinner will tip the scales at more than 3,000 calories. With appetizers and a drink or two, you’re looking at more than 4,500 calories—for one meal.…

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How Historic BRCA Research Nearly Went Off the Rails in the 80s
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How Historic BRCA Research Nearly Went Off the Rails in the 80s

As a scientist, Mary-Claire King has had a remarkable career related to her study of BRCA genes. She’s received a Lasker Award and has been recognized by President Obama with…

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New Research Options for Bernard-Soulier Syndrome Come in a Very Small Package
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New Research Options for Bernard-Soulier Syndrome Come in a Very Small Package

Do you love cheese? Have an irrational fear of cats? Are able to wiggle your nose? As humans, we share more than a few surface-level characteristics with the common house…

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A Little One with Citrullinemia Gets Gift of a Lifetime in Time for the Holidays

What do restored clawfoot tubs, spelunking meetups, and first-grade school pictures have in common? They can all be found on social media sites on the internet. But other than connecting…

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Know All About It! Register for Hypereosinophilic Syndrome Conference in March 2018
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Know All About It! Register for Hypereosinophilic Syndrome Conference in March 2018

No one knows how difficult living with hypereosinophilic syndrome (HES) is unless you walk in the shoes of those who have it, treat it, or have a loved one who…

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This Drug has Twice the Help for High Cholesterol and HeFH
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This Drug has Twice the Help for High Cholesterol and HeFH

It’s a fact. Lifestyle and dietary changes are an important part of the formula to help lower “bad” cholesterol numbers. Whether you add more heart-healthy foods, healthier fats, or whey…

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Lights! Camera! Eczema! A Day in a Life with Severe Atopic Dermatitis
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Lights! Camera! Eczema! A Day in a Life with Severe Atopic Dermatitis

Bleach baths. Hairbrushes. Scratching at skin lesions. Such is daily life when trying to find relief for the itching of severe atopic dermatitis (AD)--commonly called eczema. Now, these challenges are…

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Will Single Injection Offer Improvements for Leber Congenital Amaurosis?
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Will Single Injection Offer Improvements for Leber Congenital Amaurosis?

When something in our computers doesn’t work or has a defect, we download a “patch” from the manufacturer, and call it repaired. With ongoing scientific research and development, the practice…

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Put Down the Poutine! Doctors Sound Alarm about FH in Canada
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Put Down the Poutine! Doctors Sound Alarm about FH in Canada

Can increasing awareness and early screenings have an impact on heart health in Canada? When it comes to familial hypercholesterolemia (FH), Vancouver’s top medical advisors believe it can, according to…

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Don’t Miss These Events for CML Caregivers!
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Don’t Miss These Events for CML Caregivers!

Whether you’re dealing with chronic myelogenous leukemia (CML), chondrosarcoma, neuroblastoma, or the host of other pediatric cancer diagnoses, it’s the actual diagnosis that can take your breath away. You can…

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Global Genes Highlights Firefighter Experience with Familial Chylomicronemia Syndrome
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Global Genes Highlights Firefighter Experience with Familial Chylomicronemia Syndrome

Severe diarrhea. Daily abdominal pain. Extremely high triglycerides. Chronic pancreatitis. Joint pain. Incredibly uncomfortable conditions for anyone. Now imagine you’ve experienced this pain your entire life without knowing what was…

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5 Reasons You Should Have a Breast Cancer (BRCA-Mutation) Test
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5 Reasons You Should Have a Breast Cancer (BRCA-Mutation) Test

I always schedule my mammograms during October, as it’s Breast Cancer Awareness Month. It’s much easier to remember to get one when every network news anchor is passionately reminding me…

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