Bringing the Challenges and Rewards of Stargardt into Focus

“Don’t fight the problem, decide it.”

George C. Marshall was not known for backing down from any fight. It was most certainly drummed into him from his military training, but there is something to be said about the spirit and chutzpah that you bring to a challenge. Attitude can make a great deal of difference. This approach is very apparent when reading the online musings, observations and recommendations of a blogger with Stargardt Disease.
Stargardt Disease is a rare, inherited disorder that affects the light-sensitive sections of the eye. The most common symptom of the disease is often the slow loss of central vision in both eyes. There is no current cure for Stargardt.
The online posts stretch back to 2008 and share the highlights (and lowlights) of the disease’s progression as he “sees” the world through Stargardts. The online articles range from describing the most obvious impact of the condition from loss of vision and frustrations, to the more hidden aspects of interacting with the public and questioning self-worth.

Articles that are more recent delve into additional health issues like narcolepsy, hormone imbalances and depression, as well as envious observations of those who take their health for granted. The tone is informative and open, not at all preachy or morose.

One article in particular, dated February 21, 2017, jumps into a discussion about whether the blogger even wants a cure for Stargardts to be developed. He ponders living with the disease for most of his life and whether a cure being found would be something he would even welcome.

The blog is a great read for someone with Stargardt or for someone caring for a loved one with the disease. It reflects the very real heart and thoughts of someone who approaches each day as a fight. Someone who is willing to share lessons learned while prompting the reader to consider what else might be considered. To follow this featured blog, click here.

Are you living with Stargardt disease? Let us know your rare disease experience today.

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