Happy Friday Patient Worthians!
This week, we some news to be happy about! We have an awesome story of how thinking like a start up will help lead to more cures. We also have a new CF discovery that could help pneumonia treatment in patients.
We also have some news to be angry about. Parents of a daughter with EDS were accused of abuse because doctors didn’t know of her condition. And the medical foods situation in the USA is dangerous for PKU patients.
So sit back, and check out this week’s Editor’s Choice.
Find out how this foundation is working to cure NGLY.
Get inspired here.
CF is a devastating disease, where patients are given a life expectancy at birth.
Check out the latest research to help treat on of their common infections here.
The burden of rare disease weighs heavy on this family during the diagnosis journey.
Read more here.
Try not to get too angry at this steaming pile….
Actually, do get angry. Read more here.