Editor’s Choice: LGS Travel, Dwarfism & MDS Awareness and a Cystic Fibrosis Tale

Happy Pre-Halloween Patient Worthians!

October is Dwarfism Awareness Month. Not only that, MDS World Awareness Day was just two days ago! Get the deets below.

We also have a story from a PW contributor who knows all about traveling with rare disease. Part 1 is below. Additionally, we have an inspiring story of living longer and better with cystic fibrosis.

So relax and enjoy the fact that it’s Friday… and this week’s Editor’s Choice.
19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 1

The LGS Conference is coming up, so this is a must-read for families planning on going.

Read more here.

October is National Dwarfism Awareness Month

Check out how you can participate in National Dwarfism Awareness Month before it ends on Tuesday!

Get the details here.

Living Longer with Cystic Fibrosis: A “40 & Fabulous” Mother’s Tale

While CF still needs a cure, it has made some leaps in treatment over the past few decades.

Read how this mom is living with CF.

Make Way for MDS World Awareness Day 2017 Next Week!

MDS World Awareness Day was this week.

Check out resources for MDS here.


Do you have a rare disease experience of your own? Share with us here.
Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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