Happy Pre-Halloween Patient Worthians!
October is Dwarfism Awareness Month. Not only that, MDS World Awareness Day was just two days ago! Get the deets below.
We also have a story from a PW contributor who knows all about traveling with rare disease. Part 1 is below. Additionally, we have an inspiring story of living longer and better with cystic fibrosis.
So relax and enjoy the fact that it’s Friday… and this week’s Editor’s Choice.
The LGS Conference is coming up, so this is a must-read for families planning on going.
Read more here.
Check out how you can participate in National Dwarfism Awareness Month before it ends on Tuesday!
Get the details here.
While CF still needs a cure, it has made some leaps in treatment over the past few decades.
Read how this mom is living with CF.
MDS World Awareness Day was this week.
Check out resources for MDS here.