ICYMI: Positive Phase 3 Trial Results for Lennox-Gastaut Syndrome
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ICYMI: Positive Phase 3 Trial Results for Lennox-Gastaut Syndrome

Lennox-Gastaut syndrome (LGS) is a form of epilepsy.  Most patients with this condition are resistant to current treatments and experience seizures throughout the duration of their life. They may face…

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Phase 3 Lennox-Gastaut Syndrome Trial Ends in Positive Results
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Phase 3 Lennox-Gastaut Syndrome Trial Ends in Positive Results

According to a story from gurufocus.com, the pharmaceutical company Zogenix, Inc., has recently announced top-line results from its phase 3 clinical trial. This trial is testing FINTEPLA® as a treatment…

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CBD-Based Treatment for Rare Childhood Epilepsies Gets Recommendation from NICE
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CBD-Based Treatment for Rare Childhood Epilepsies Gets Recommendation from NICE

According to a story from BioPortfolio, the biopharmaceutical company GW Pharmaceuticals plc recently announced that its medicine Epidyolex has earned recommendation from the UK National Institute for Health and Care…

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19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 2
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19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 2

Check out part 1 of this LGS post here. After prepping: Arrive at the airport early – Ask the airline agent at check-in about getting your wheelchair assistance. Use this…

Continue Reading 19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 2
19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 1
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19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 1

Traveling is certainly possible and can be more relaxing with some pre-planning and organization.  Some of these ideas may not be applicable to you and your family.  I have compiled…

Continue Reading 19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 1

Registration is Open for This International Lennox-Gastaut Syndrome Conference

Pack your bags LGS Warriors, your conference is headed to Orlando, FL this November! The LGS Foundation is holding it's fifth International Family and Professional Conference to promote collaboration between LGS…

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