Disease and community are both powerful things. When AAG, a rare disease affected Erika's life, her community fought back with her. Find out how below, and follow the full story…
All her life, Caitlin Shaw, a 15-year-old girl in England, has faced a number of serious health problems. She was born with numerous heart complications, as well as Kyphoscoliosis and…
You've seen hydrogels before: they're used in glues, contact lenses, breast implants, band-aids-- the list goes on. Hydrogels aren't exactly one thing, but a classification of gel: they're solid gel…
Hannah Chertock's art is a stunning testament to patience, and a thorough investigation of what it means to live in a human body. Chertock, the artist behind Bodies Adapt, studied…
They say you have to suffer for your art-- this actor and director took that literally. Shooting a major feature film is exhausting work. Salman Khan, a huge name in…
Kelley O'Brien's hands shook as she stood in her bathroom, preparing for a date. It wasn't that she was nervous, or at least, she wasn't nervous in the way that…
According to sarcoidosisnews.com, acne causing bacteria may be the culprit in sarcoidosis, an inflammatory disease that affects the lungs and lymph nodes. Sarcoidosis can cause flu-like symptoms, weight loss, coughing…
Are eyes really the window to the soul? A recent study shows that they are, at least, a window into Angelman syndrome. Angelman syndrome (AS) is a neuro-genetic condition. It's…
As originally reported by WCSH6 Portland, Kate Woodside has become an internet inspiration to other kids affected by Alagille Syndrome. It’s common these days to hear complaints about kids spending…
Jenna Lowe is an organ donor and social activist and before she died, she created a legacy that would live on in the rare disease community and save lives. She…
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