Today is Bohring-Opitz Syndrome (BOS) Awareness Day!
You’d be forgiven if you haven’t heard of this rare disease, which is why awareness days exist!
Bohring-Opitz Syndrome is an extremely rare condition that affects the development of many different parts of the body due to intrauterine growth restriction, specifically in the head with characteristic eye problems, skull abnormalities, and abnormal facial features. To learn more about it, click here.
BOS causes recurrent episodes of an abnormally slow heartbeat, which eventually causes death by early adulthood in most patients. Read more about it here.
This year makes the fourth annual Bohring-Opitz Syndrome Awareness Day, and in its honor, here are some ways we can raise awareness and understanding of this often deadly condition:
Show your support by showing your colors – denim and gold!
Sometimes, all you need is a snazzy color scheme to get the conversation started! So by wearing these colors (gold especially can catch the eye!) – you’ll draw attention to yourself and have an opportunity to educate someone about BOS.
The BOS Foundation has launched a social media campaign to spread awareness by posting pictures with the hashtag #BOSAware…so join in! You can help out by sharing this YouTube video and/or posting photos on Facebook, Instagram, or Twitter with the hashtag #BOSAware!