Since 2015, April 6 has been recognized as Bohring-Opitz Syndrome Awareness Day, a time to spread awareness about this rare disease among the medical field and the general public. The…
The 2018 BOS Family Meet-Up This conference will be an event of support and celebration for BOS patients and their families. Attendees will be able to network, share stories, and…
Today is Bohring-Opitz Syndrome (BOS) Awareness Day! You'd be forgiven if you haven't heard of this rare disease, which is why awareness days exist! Bohring-Opitz Syndrome is an extremely rare condition…
Happy Friday Patient Worthians! April is Sjogren's Awareness Month! There was also a whole day dedicated to Bohring-Opitz Syndrome. The MDS Foundation has another upcoming event as well. Lastly, last month…
Tomorrow is Bohring-Opitz Syndrome (BOS) Awareness Day! If that illness doesn't sound familiar to you - you're not alone. BOS is a very rare disorder; so rare that estimates number at…
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