Researchers have found that forms of certain genes can influence how successful a blood and marrow transplant is, reports Roswell Park. This has important implications for understanding patient outcomes and…
According to a story from The Irish Times, Noreen O'Carroll can vividly remember when she first received the news that she had been diagnosed with idiopathic pulmonary fibrosis. It was…
As a female Bible college student, an outside marker of pious and godly womanhood consisted of having a male significant other. While this is not strictly a religious sentimentality about…
An online patient survey has found that 96% of pulmonary fibrosis patients, and 93% of cystic fibrosis patients, support being able to monitor their lung function at home between visits…
There is a growing consensus that patients need to be more included in the medical field, reports PCMA Convene. Over the last ten years increasing numbers of organisations have moved…
According to a recent study, cognitive behavioral therapy may be the solution for patients with misophonia, The Daily Beast reports. Misophonia, which literally means “hatred of sound,” is a rare…
It's a parent's worst nightmare-- a rare disease that strikes early in life, and without treatment, can cause a patient's death. Tyrosinemia type 1 (TYR1), is a form of a…
Eva-Rose Sturgess is eighteen months old. She faces a disease for which there is no known cure: leukodystrophy. Her parents felt like their world came apart at the seams when…
The country singer, songwriter Gavin DeGraw has released a video to raise awareness for pancreatic cancer as part of an on-going campaign by the Lustgarten Foundation, reports PR Newswire. In…
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