Happy Friday, everyone!
We hope everyone’s drinking water, wearing sunscreen, and taking a little time to relax this summer. As we get ready for the weekend, we’ve gathered four recent stories to check out. First, we have a piece from PW Contributor Loukisha that most people with a rare disease can relate to. Next, we have a story from Jenna Roberts about making sure teenagers know about POTS. Finally, we have articles about a novel solution for patients with kidney disease, and and update in periodic paralysis research.
Sit back and enjoy this week’s Editor’s Choice.
I’m Always Saying Sorry: Apologizing for My Hereditary Angioedema
PW Contributor Loukisha is back to discuss an experience that most rare disease patients understand: apologizing for factors outside her control.
Check out her take here.
Driving Awareness of Dysautonomia in Teens
After PW Contributor Jenna was diagnosed with dysautonomia, she created a website for other like her.
Read about it here.
Cleveland Clinic Has Performed Their First Three-Way Kidney Transplant
Are you not a match for your loved one who needs a kidney? There may be more options available.
Read about it here.
Scientists Have Discovered a Mechanism Behind Hypokalemic Periodic Paralysis
Periodic paralysis isn’t an easy ride, but new research may help scientists have a better understanding of how the condition works.
Check out the story here.
