Editor’s Choice: Combating Isolation and Finding Purpose with Rare Disease

Happy Friday, everyone!

We hope the weekend is bringing everyone some time to relax. Today, we’re wrapping up the week with four stories we wanted to highlight this week. We have two insightful patient contributions to start off with, an article on gene editing, and and the story of one multiple myeloma patient determined to make a change.

Sit back and enjoy this week’s Editor’s Choice.

The Impact of Chronic Pain on Social Life

PW Contributor Tom discusses how chronic pain caused by dystonia affected his relationships with other people. If you deal with chronic pain, we bet you’ll resonate with this.

Check out his take here.

Finding Your Purpose: Erika’s PSC Story

After PW Contributor Erika was diagnosed with PSC, she faced frightening challenges. However, throughout her journey, she found a way to use her struggle for good.

Read about it here.

Multiple Myeloma Survivor Isn’t Stopping the Search For a Cure

When one woman was diagnosed with multiple myeloma, she took action and made change for other patients.

Read about it here.

Take Me To Church: George Church sees the future in your genes

Have you heard about George Church? The Harvard geneticist speaks about the future of gene therapies.

Check out the story here.


We hope you enjoy this week’s Editor’s Choice posts! Don’t forget to share!

Do you have a rare disease experience of your own? Share with us here.

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