UK Cystic Fibrosis Patients are Protesting to get a Vital Drug Covered on the NHS
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UK Cystic Fibrosis Patients are Protesting to get a Vital Drug Covered on the NHS

Cystic fibrosis patients in the UK are planning a protest on November 19th, 2018 with the goal of getting Orkambi, an important cystic fibrosis drug, covered on the NHS. This…

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New Development Deal Struck for Experimental Alagille Syndrome Treatment
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New Development Deal Struck for Experimental Alagille Syndrome Treatment

According to a story from prnewswire.com, the drug developer Mirum Pharmaceuticals recently announced that is has entered an agreement with Shire which grants exclusive rights for marketing and development of…

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Ready to Donate to a Rare Patient on GoFundMe? Make Sure you are Paying for Something That Works
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Ready to Donate to a Rare Patient on GoFundMe? Make Sure you are Paying for Something That Works

According to a story from ncbnewyork.com, a recent study found that $7 million on donations on crowdfunding sites for medical patients have gone towards treatments that are medically unsound and…

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This Foundation is Offering Cash Rewards for Breakthroughs in Progressive Supranuclear Palsy

According to a story from Xconomy, the Rainwater Foundation, which was first founded in the 90s by Texas billionaire Richard Rainwater, is offering cash rewards to the tune of $250,000…

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Is Phage Therapy the Best Hope for Cystic Fibrosis Patients That Can’t be Treated With Antibiotics?
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Is Phage Therapy the Best Hope for Cystic Fibrosis Patients That Can’t be Treated With Antibiotics?

According to a story from Buzzfeed News, Paige Rogers was 21 years old when she was admitted to the hospital. She was having trouble breathing because of cystic fibrosis. Over…

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