A Recently Approved Drug for Lambert-Eaton Myasthenic Syndrome Could Cause Costs to Skyrocket
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A Recently Approved Drug for Lambert-Eaton Myasthenic Syndrome Could Cause Costs to Skyrocket

According to a story from statnews.com, the recent FDA approval of a new treatment for Lambert-Eaton myasthenic syndrome could actually be bad news for patients. As it turns out, the…

Continue Reading A Recently Approved Drug for Lambert-Eaton Myasthenic Syndrome Could Cause Costs to Skyrocket
NY Giants Running Back Saquon Barkley Spotlights Rare Disease 22q on Good Morning America
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NY Giants Running Back Saquon Barkley Spotlights Rare Disease 22q on Good Morning America

As part of the NFL's "My Cause, My Cleats" awareness project, New York Giants Running back Saquon Barkley chose 22q11.2 deletion syndrome (22q) as his cause to highlight! And while that…

Continue Reading NY Giants Running Back Saquon Barkley Spotlights Rare Disease 22q on Good Morning America
Being a Caregiver: A Labor of Love (But We Still Need Support)
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Being a Caregiver: A Labor of Love (But We Still Need Support)

Caregivers come from all walks of life but they share one common goal- taking care of someone they love who cannot fully take care of themselves. This may mean helping…

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New Treatment for Lambert-Eaton Myasthenic Syndrome Approved by FDA!
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New Treatment for Lambert-Eaton Myasthenic Syndrome Approved by FDA!

Lambert-Eaton Myasthenic Syndrome (LEMS) is an autoimmune disorder. It's a rare condition characterized by muscle weakness in the limbs. When the muscle weakness includes the respiratory muscles, the disease can…

Continue Reading New Treatment for Lambert-Eaton Myasthenic Syndrome Approved by FDA!
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