New International Working Group Answers COVID-19 Questions from Myasthenia Gravis Patients
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New International Working Group Answers COVID-19 Questions from Myasthenia Gravis Patients

  New information, speculation, statistics, and predictions about COVID-19 are hitting the internet every day. Yet neurologists are attempting to answer their patients’ questions without having sufficient data that would…

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Study Tracks Survival, Quality of Life, and Follow up for Lambert-Eaton Myasthenic Syndrome Patients
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Study Tracks Survival, Quality of Life, and Follow up for Lambert-Eaton Myasthenic Syndrome Patients

According to a study published in the scientific journal Neurology, the survival rates of patients with Lambert-Eaton myasthenic syndrome (LEMS) were compared to that of the general population as well as…

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CMS is so Rare That it Took Four Years to Enroll Twenty People for a Trial

  According to a recent article in Biospace, Catalyst Pharmaceutical’s CMS-001 Phase 3 study ended with mixed results. The trial was billed as the first placebo-controlled double-blind study testing amifampridine phosphate (brand…

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Study Finds Similar Rates of Lambert-Eaton Myasthenic Syndrome (LEMS) in Europe and the US
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Study Finds Similar Rates of Lambert-Eaton Myasthenic Syndrome (LEMS) in Europe and the US

According to a story from Lambert-Eaton News, a recent large scale study using data from the Veterans Affairs has determined that the prevalence of Lambert-Eaton myasthenic syndrome (LEMS) is similar…

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Study Finds Firdapse is the Most Effective Treatment for LEMS, but it is Not The Most Commonly Prescribed

Results from the largest United States study to date of Lambert-Eaton myasthenic syndrome (LEMS) have indicated that for the majority of patients, Firdapse is the most effective treatment option currently…

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Bernie Sanders Fights Back Against 375,000 Price Tag for Lambert-Eaton Myasthenic Syndrome Treatment

Lambert-Eaton Myasthenic Syndrome Lambert-Eaton Myasthenic syndrome (LEMs) is a rare autoimmune disease. The body's immune system targets nerve cells meaning patients experience muscle weakness. Other symptoms of LEMs include difficulty walking…

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A Recently Approved Drug for Lambert-Eaton Myasthenic Syndrome Could Cause Costs to Skyrocket
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A Recently Approved Drug for Lambert-Eaton Myasthenic Syndrome Could Cause Costs to Skyrocket

According to a story from statnews.com, the recent FDA approval of a new treatment for Lambert-Eaton myasthenic syndrome could actually be bad news for patients. As it turns out, the…

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New Treatment for Lambert-Eaton Myasthenic Syndrome Approved by FDA!
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New Treatment for Lambert-Eaton Myasthenic Syndrome Approved by FDA!

Lambert-Eaton Myasthenic Syndrome (LEMS) is an autoimmune disorder. It's a rare condition characterized by muscle weakness in the limbs. When the muscle weakness includes the respiratory muscles, the disease can…

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Learn What Lesson One Woman With LEMS Can Teach Us All
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Learn What Lesson One Woman With LEMS Can Teach Us All

It all started when Romy felt that her health was growing worse after having back surgery. She believed that something was wrong, but her doctors assure her the surgery was successful.…

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Not-So-Mad Scientist Tests LEMS Treatments on Himself
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Not-So-Mad Scientist Tests LEMS Treatments on Himself

The image of a scientist conducting research on himself is a plot element in most superhero stories, as well as the classic Robert Louis Stevenson novella Strange Case of Dr.…

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Biopharma Company Catalyst Closes in on a Treatment for LEMS
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Biopharma Company Catalyst Closes in on a Treatment for LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune disorder that affects the patient's pelvic and thigh muscles, gradually weakening them. It's closely tied with small cell lung cancer because it affects…

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