Eosinophilic Asthma Treatment Nucala has FDA Approval Expanded to Children Aged 6 to 11
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Eosinophilic Asthma Treatment Nucala has FDA Approval Expanded to Children Aged 6 to 11

According to a press release from global pharmaceuticals titan GlaxoSmithKline, the US Food and Drug Administration (FDA) recently expanded approval of the Company's eosinophilic asthma treatment Nucala (generic name mepolizumab)…

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Study Finds Prices for Multiple Sclerosis Drugs are Going Up: We Need to Do Better

There are currently 11 treatment options for multiple sclerosis (MS) in the United States. Some of these are symptomatic treatments, and some actually slow progression of the disease. Before 2009…

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Specialty Pharmacists Play Important Role in Treatment of Primary Immunodeficiency Patients
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Specialty Pharmacists Play Important Role in Treatment of Primary Immunodeficiency Patients

A recent publication from Specialty Pharmacy Times noted that the rapidly-growing number of available human immunoglobulin treatments for primary immunodeficiency disorders could pose challenges for specialty pharmacists when treating patients.…

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Michigan Researchers to Study Neurofilament Light Chain Blood Levels as a Predictor of Multiple Sclerosis
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Michigan Researchers to Study Neurofilament Light Chain Blood Levels as a Predictor of Multiple Sclerosis

According to a publication from BioSpace, researchers from Michigan's Memorial Healthcare Institute for Neurosciences and Multiple Sclerosis are taking full advantage of recent technological advances in neurofilament light chain testing…

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Desperately Seeking Solutions: Parents Create their Childs Therapy Themselves

As originally reported in the Washington Post: many parents of children with rare diseases are familiar with the agony of mystery surrounding their children’s medical conditions. The frustration of searching…

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NHS Finally Reverses Almost 2 Year Policy Against Offering Cerliponase Alfa to Batten Disease Patients
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NHS Finally Reverses Almost 2 Year Policy Against Offering Cerliponase Alfa to Batten Disease Patients

According to a recent publication from Express Digest, England's National Health Service (NHS) has reversed its earlier position on a rare disease drug after lengthy public debate, now agreeing to…

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Caregivers of Rare Disease Patients Must Also Care For Themselves

Allostasis Allostasis is a concept coined by Joseph Eyer and Peter Sterling, colleagues at the University of Pennsylvania. In 1981 they published a paper which contested previous theories on the…

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